Home at last!

I'm finally home. Thanks for all your comments and support. I feel much perkier at home than I did in the hospital, probably because I have been walking on my legs more. My head is still a little swollen and I have to rest for a few days but it is really nice to be back home. Sophie xx

Sophie has had a good day following her op. The neuro-surgeons are fairly happy and she'll have another scan soon. She has asked me to say thank you for all your support, that her head hurts a little, and that she has taken lots of medicine today, mostly orally (a small miracle in itself!). She should be home early next week.

Thanks!

Hi! Thanks for all your comments! At the moment I am really SCARED!!!!!!! I know that doesn't sound good, so to make you laugh I have installed a picture of me pretending to kill my brother. It was Invaders Day at school, and I dressed up as a Viking! Until next time, Sophie xx

operation move out

The operation is definitely going to be on Friday now, and I'm going in on Thursday to have an injection. I shall keep the tube (or cannula) that goes in with the injection for the rest of the day and night. Therefore I shall have to stay the night in Hospital. On Friday they'll put the cannula into use by making me go to sleep using an anaesthetic. I am a bit anxious about everything but mostly about what the bandage will feel like and also the anaesthetic. Sophie xx

JUST A CHAT...or maybe!!

Thank you for your replies! My Dad has just found out that we need to go to GOS tomorrow to chat to the consultants in order to decide what to do next. Unfortunately for me I might have to have a scan the same day or next day, so I have to pack an overnight bag. They might have to operate on Friday, if not then maybe Monday...

Eye Sight!!!

Hi! Sorry I haven't been writing much, but I had nothing much to say. But fortunately now I do have something to say! For a while I have been having headaches and needing to rest in the middle of the school day. Then one day I went up to London to have my eyes checked. Unfortunately, they found out that my colour vision was getting worse!! Luckily for me we didn't have to do the MRI scan that very day. I had to wait a week before the big day arrived. Since I last went for an MRI scan they have done a lot of work on a new reception area and so we went in through a new door. I didn't have to wait long before they called me in. This time they didn't put any magic cream on my hands (etc). But the lady said that I could have the magic spray instead. At first I was scared of the idea but when I heard that it did exactly the same thing (except although it only lasts for five minutes your hand goes numb immediately you put it on) I was convinced. The injection was over really quickly. Mummy said that I could have a present for being so good but in the end we ran out of time so Daddy bought me a bar of galaxy chocolate instead! xx

still growing

Today I went to the Rosenheim building, which is a part of UCL hospital in London. First I was weighed and measured, and I have both grown and put on weight. Then I talked to the endocrinologist about how I'm getting on with my genotropin pen, and the only different thing that I have to do is to use a shorter needle, and have a slightly bigger dose of the growth hormone. Also I will have a blood test in six month's time, at the same time as my next MRI scan at GOS so they can use the same cannula. On the way back Daddy took me into St.Paul's Cathedral before getting the train home! There wasn't any time to go to school before my piano lesson. Lots of love, Sophie x