My Birthday!

Hello. I have just looked at the last date of the blog and I have realised that I've not even been on here for a very long time. Since I have not had any treatment for a while I thought I would go to the next biggest occasion, my birthday!! It is coming up in 12 days and I can't wait!! I have already received a present and a couple of cards and I am eagerly waiting for more post. I have decided on a party and it is a roller skating party. I'm allowed up to 11 friends and guess what? I'm allowed to bring my own music!!! That is sooooo cool because I love all my music and the music I choose will be really great.

I'm glad there are still people who look on my blog. I hope you like this blog and will continue watching my blog. See until next time, bye!!

last month's MRI scan

Hi! Sorry this update is really late, but I've been a bit busy at school. Anyway, I've had another MRI Scan that I want to talk to you about. Now we all know that I usually have magic cream that makes my skin go numb, but this time I had something else to make it go numb. It was another scan that I didn't scream in. However, there was something that was worrying me. There wasn't any time to use the magic cream because you had to wait 20 minutes before it would work. The nurse said she thought we might use the spray today. The spray had been mentioned to us before but we had never actually used it.  So, I gave it a go since I had no other option. I told the nurse to go ahead and spray my hand, and it was icy cold but I didn't make a fuss and it worked just fine. 

A week later we had a follow up appointment in the new Safari ward which replaces Elephant Day Care to see the results of the scan and everything was OK! Hope everyone has a good Easter holiday. Lots of love, Sophie xx

Ten days to go!!

Dear all,
This is going to be my last blog before Christmas and I just thought I could wish you all a
Happy Christmas and New Year
before the great day arrives!

I also wanted to say that my GOSH consultant is happy with my scan, and I don't need another one until February. I am also growing well thanks to the Growth Hormone. Everybody here is fine apart from Jack who has broken his arm. He has arm in plaster for the next few weeks but is still his cheeky self!! I wish you all a very merry Christmas. Love from Sophie xx

a brilliant scan

Guess what guys - today I had my MRI scan at Great Ormond Street. Before the scan I also saw the Endocrinologist's assistant at UCL for a chat, which was just to check everything was ok. But the main thing that I want to talk about is my scan. Usually I scream the place down when they do the contrast injection but today this is what happened: half way through the scan I came out of the machine as normal and they took off the tape which holds the cream in place. Then she said they would use the left hand for the injection. I gave her my hand, she wiped it clean and then squeezed it to bring up the vein. I took a moment to compose myself and then let her do the injection. I was thrilled how well it went! Lots of love, Sophie xx

Back to school!

Hi. Sorry I haven't blogged recently since I have just gone back to school. Now I have some time off to tell you how I'm getting on. First, I'm going to tell you about my birthday. It was a bit of a disaster because I woke up in the middle of the night to find balloons everywhere on my bedroom floor. Of course, I was meant to wake up in the morning and have a surprise but.... However, I had a great time going to The Cricketers and, of course, opening my presents. For my party I went to the cinema to watch the Bratz movie with five of my friends. I'm starting L2G this year, and it is turning out much better than last year. But sadly I'm still getting those headaches! Its odd really. We can't work out why I'm still getting them. But I'm having another MRI scan in a week's time which is a bit scary. Guess what? The first week we went back I was "Star of the week"! Love, SOPHIE XXX

summer update

Hello everyone, I'm sorry that I haven't updated my blog recently. I have been so busy having a nice time because it's the holidays! However, I have now some news about my vision and a chat with my consultant. In the past two weeks I have been to Great Ormond Street Hospital three times. First there was an electrograph eye test. What happens is that they put some gel on my head, which feels quite rough, then they attach electrodes all over my head. They test one eye at a time by covering the other with an eye-patch so that I look like a Pirate! While watching a film they interrupt with flashing black and white squares and I have to keep my eyes focused on a red dot in the middle of the screen. The flashing squares get smaller and smaller. The second trip was in order to chat to the Professor who operated on me, for which we were in The Royal London Homeopathic Hospital building (which is next door to GOSH). He was very happy to see me again and I was happy to see him too! He asked me how I was getting on and answered my worries over how my head was feeling. He said I could blame him for every sore thing because he did the operation! The third and most recent trip to GOSH (today!) was for a further eye test and chat with the ophthalmologists. The test was a Visual Field test where I have to lean into a machine called a Goldmann. I have copied some information about this test with a picture. Here it is:

• The Goldmann visual field is manually operated, unlike the Humphrey and Esterman tests which are computerised. The patient fixates on a target at the centre of the screen. Lights are presented to the patient by moving them in from the outside of the screen. The patient presses a button when they first see the light enter their field if vision. The size and brightness of the presented lights are changed in order to map out the sensitivity of the eye to different stimuli. The resulting chart produced from the Goldmann test is similar to a contour map of the sensitivity of the eye.

They said that the results from the two tests showed a slight improvement following my operation! I now do not have another MRI scan until September or maybe October, but I hope to post again soon! Thank you for all your posts. You have all been very kind. Love from Sophie xxx

Hello, sorry I haven't been writing recently. I haven't had much to report but now I do. I am feeling much better. Yesterday we went to the shops and I bought "Howl's moving castle" and an Enid Blyton book. Today I went for a short bicycle ride in the morning and had my face painted in the afternoon, although I should really be resting! Thank you so much for all your kind messages, Sophie xx